What's The Tea?

This Month’s HS Support Network Topic: Pain Management
Join us for an empowering session with Sue Barnes, Consultant Nurse in Pain Management at the Manchester & Salford Pain Centre (NHS). With 27 years’ experience and a Master’s in Pain Management, Sue specialises in persistent and neuropathic pain, helping patients better understand and manage long-term symptoms like those caused by HS.

📩 Email us to join the waiting list and receive monthly Zoom invites for upcoming sessions and peer support.

hssnukandireland@outlook.com.

The HS Support Network

HS Ireland’s latest blog post explores the concept of Cumulative Life Course Impairment (CLCI) in Hidradenitis Suppurativa (HS)—a powerful and insightful study examining how HS can affect key areas of life over time, including education, mental health, relationships, sexual health, and career progression.

It’s a thought-provoking read that sheds light on the long-term impacts of living with HS.
Click here to explore the full article—well worth the read!

HS Ireland

For HS Awareness Week (June 2–8), HS Connect is rolling out a series of engaging activities worldwide. These include an in-person support meeting and awareness walks in Australia, the launch of the first-ever “Brotherhood” podcast in the USA, created specifically for men living with HS, and the “5K Walk, Move or Mingle” event in partnership with UCB, HS Foundation, and Incyte. Check out www.hsconnect.org or their socials for more!

HS Connect

The British Skin Foundation (BSF) is the only UK charity solely dedicated to funding research into all types of skin disease—including skin cancer. Their work is especially relevant to the HS community, as living with Hidradenitis Suppurativa often comes with additional skin challenges such as hyperpigmentation, seborrheic dermatitis, keloid scarring, and more.This summer, they’ve announced an exciting opportunity: the 2025 BSF / Skin Health Alliance Skin of Colour Research Award is now open for applications.

Click here to head to their website for full details on how to apply and key deadlines.

British Skin Foundation

'HS is not here to punish us, but to teach us new ways to love ourselves'

Join us in promoting well-being and

self-care events and exhibitions.

LWHS Coming Soon

Upcoming Events Calendar

Stay tuned for exciting events and workshops to be held during HS Awareness Week.

Learn More

Resource Fair

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Holistic Healing Sessions

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Clinical Workshops

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Community Support

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Get Advice & Information

Symptoms

Hidradenitis Suppurativa (HS) is a long-term skin condition that causes painful lumps, abscesses, and scarring, usually in areas like the armpits, groin, and under the breasts. It often starts after puberty and affects 1–4% of the population

Living with HS

With the right treatment and support, people living with Hidradenitis Suppurativa (HS) can still enjoy a good quality of life.
Discover the help and resources available—for yourself or someone you care about. You’re not alone.

Your Experiences

Your story matters. Sharing your lived experience with Hidradenitis Suppurativa can help raise awareness, reduce stigma, and let others know they’re not alone. Your voice could be the comfort or clarity someone else needs—speak up, be heard, and help build a stronger HS community.

HS Symptoms